We needed to go to Vegas today to try to find some uncontaminated bedding for me. Unfortunately, my reactions to my sleeping bag have gotten much worse. I now break out in hives as soon as I get into it, even outdoors in the pristine air. Not to mention, it cross contaminated some blankets that had previously felt fine. The sleeping bag didn’t feel great from the beginning but it was much better than the other two sleeping bags I had tried previously. I’m thinking maybe it got more contamination on it when we spent the night in Moab.
Because of the exposures I suffered yesterday, we were already getting low on clean laundry. I had to wash a couple shirts this morning before we could leave for our errands in Las Vegas. We’ve learned from experience that one extra shirt is almost never enough for a day in civilization! I usually experience multiple reactions.
It was a good thing I washed those extra shirts because I ended up needing to decontaminate 5 times today! I think that might be a record! I’m starting to hate going into town.
Now that I sort of know what normal feels like, it’s really hard to make myself do something that I know will bring back dreadful symptoms. I can’t think of anyone who would willingly walk into a world of joint pain, back pain, throat swelling, hives, headaches, cognitive difficulty, panic attacks, and depression. Unfortunately, I didn’t really have a choice today, so I did my best to be brave.
At the very least, I needed to go along so that I could test the bedding and make sure I didn’t react. It didn’t go so well last time when Brett tried to pick out a sleeping bag for me by himself. Besides, I don’t think it would be wise for Brett to leave me alone all day with how sensitive I am right now. What if I went into anaphylaxis? It would take him an hour and a half to get back to me.
So I tagged along as usual and did my best to endure my suffering patiently. Brett went into Target and bought a bunch of blankets. I tested them one by one, by holding them against my skin. Then he went back into the store to return the ones I reacted to. We repeated this process three times until we finally ended up with four safe blankets. Unfortunately, I reacted to all the sleeping bags we tried! I’m starting to wonder if maybe I’m reacting to the flame retardants they’re treated with. It seems odd that I haven’t been able to find a single safe sleeping bag.
After we got everything we needed at Target, we went to Whole Foods to get groceries. I waited in the car as usual because I am still too reactive to enter buildings. I can’t wait for my reactivity to start decreasing! Even if it takes many months for that to happen though, mold avoidance is already worth the trouble. I’m just thankful that I have days where I can remember what it feels like to be normal.
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